Hypermobile EDS (hEDS)
Common Symptoms Reported
Pain: Widespread, chronic, does not correlate with seemingly “normal” imaging results
Source of pain: Headache, neck, jaw, wrists, fingers, back, sacroiliac joint, muscle spasms
Joint mobility: Unstable joints, systemic hypermobility, excess range of motion, frequent subluxation/dislocation
Endurance: Poor exercise tolerance, severe fatigue, deconditioned
GI/Digestion: Constipation, poor motility, multiple food allergies/intolerances
Function: Orthostatic intolerance, requires rest to function, school/work hard
Psychosocial: Disabling anxiety, depression, fear of getting hurt, discounted by MDs, fearful of starting PT concerned it may flare symptoms
Social: Socially isolated, can’t keep up with peers, difficulty holding job
Neuro: Headaches, clumsiness, brain fog, unstable cervical spine, difficulty with word finding, numbness/tingling
Cardiac: Palpitations, poor exercise tolerance, low BP, POTS, blood pooling, flushing
Allergy/immunology: Excessive mast cell reactions, multiple food/chemical allergies
Sleep: Difficulty falling and staying asleep, extreme fatigue
Skin: Soft skin, poor wound healing, stretch marks, piezogenic papules
OB/GYN: Prone to premature labor, pelvic organ prolapse, pelvic pain, incontinence
Here is the worksheet that medical providers will use to help determine if you meet the CLINICAL diagnosis of hEDS: https://ehlers-danlos.com/wp-content/uploads/hEDS-Dx-Criteria-checklist-1.pdf
[Please note: Wendy4Therapy is not a medical doctor and is not licensed to provide an official medical diagnosis. Education provided here is for your information only, and it is expected that you visit a medical practitioner who is licensed to provide a diagnosis for further exploration. Wendy4Therapy can take you through the diagnostic criteria but cannot formally diagnose EDS or related conditions. Please do not reproduce without permission. This is GENERAL and not intended to be customized for individual patients. Please follow consultation and recommendations of your healthcare provider for specifics to your condition.