Hypermobile EDS (hEDS)

Common Symptoms Reported

Pain: Widespread, chronic, does not correlate with seemingly “normal” imaging results

Source of pain: Headache, neck, jaw, wrists, fingers, back, sacroiliac joint, muscle spasms

Joint mobility: Unstable joints, systemic hypermobility, excess range of motion, frequent subluxation/dislocation

Endurance: Poor exercise tolerance, severe fatigue, deconditioned

GI/Digestion: Constipation, poor motility, multiple food allergies/intolerances

Function: Orthostatic intolerance, requires rest to function, school/work hard

Psychosocial: Disabling anxiety, depression, fear of getting hurt, discounted by MDs, fearful of starting PT concerned it may flare symptoms

Social: Socially isolated, can’t keep up with peers, difficulty holding job

Neuro: Headaches, clumsiness, brain fog, unstable cervical spine, difficulty with word finding, numbness/tingling

Cardiac: Palpitations, poor exercise tolerance, low BP, POTS, blood pooling, flushing

Allergy/immunology: Excessive mast cell reactions, multiple food/chemical allergies

Sleep: Difficulty falling and staying asleep, extreme fatigue

Skin: Soft skin, poor wound healing, stretch marks, piezogenic papules

OB/GYN: Prone to premature labor, pelvic organ prolapse, pelvic pain, incontinence

Here is the worksheet that medical providers will use to help determine if you meet the CLINICAL diagnosis of hEDS: https://ehlers-danlos.com/wp-content/uploads/hEDS-Dx-Criteria-checklist-1.pdf

[Please note: Wendy4Therapy is not a medical doctor and is not licensed to provide an official medical diagnosis. Education provided here is for your information only, and it is expected that you visit a medical practitioner who is licensed to provide a diagnosis for further exploration. Wendy4Therapy can take you through the diagnostic criteria but cannot formally diagnose EDS or related conditions. Please do  not reproduce without permission. This is GENERAL and not intended to be customized for individual patients. Please follow consultation and recommendations of your healthcare provider for specifics to your condition.